Ritka Betegségek Világnapja 2014.

Tisztelettel és szeretettel meghívjuk a Ritka Betegségek Világnapja alkalmából szervezett programjainkra, melyeket a RIROSZ, a Ritka és Veleszületett Rendellenességgel Élők Szövetsége rendez 40 tagszervezetével karöltve.

Dátum: 2014.02.22. 10:00-16:00
Helyszín: Magyar Mezőgazdasági Múzeum

A program célja, hogy olyan fórumot teremtsen, ahol az érintett érdekcsoportok közösen tudják megvitatni a ritka betegségekkel élők helyzetét, terveit.

Idén a fő témánk: A ritka betegségek speciális ellátási és gondozási szükségletei

Mindezt az „Együtt a minőségi ellátásért!” nemzetközi jelmondat égisze alatt, mellyel a szolidaritás fontosságára kívánjuk felhívni a figyelmet!

Tervezett programjaink:
- Szakmai konferencia
- Betegszervezetek bemutatkozó standjai
- Poszterszekció
- Ritka Szépségek Gyűjteménye kiállítás
- Játék-Tér
- Kézműveskedés
- Szórakoztató programok
- Tombola
- Sajtótájékoztató

További részletek: ritkanap.rirosz.hu, www.rarediseaseday.org

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